ASCOT development
Caiels J, Rand S, Mikelyte R, Webster L, Field E and Towers A-M (2024), Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social care. Quality of Life Research. https://doi.org/10.1007/s11136-024-03791-0
Rand S, Towers A-M, Allan S, Webster L, Palmer S, Carroll R, Gordon A, Akdur G, Goodman C (2024), Exploratory factor analysis and Rasch analysis to assess the structural validity of the Adult Social Care Outcomes Toolkit Proxy version (ASCOT-Proxy) completed by care home staff. Quality of Life Research. https://doi.org/10.1007/s11136-024-03631-1
Towers A, Rand S, Collins G, Smith N, Palmer S, Cassell J (2023) Measuring quality of life in care homes when self-report is challenging: the construct validity, structural characteristics and internal consistency of the mixed-methods adult social care outcomes toolkit. Age and Ageing, Volume 52, Issue 9, September 2023, afad168, https://doi.org/10.1093/ageing/afad168
Rand S, Towers A, Malley J, Silarova B (2022) Exploring the structural characteristics of the Adult Social Care Outcomes Toolkit (ASCOT) and ASCOT-Carer. NIHR Open Research. 2 (21), 1-15. DOI: https://doi.org/10.3310/nihropenres.13259.1
Towers A, Smith N, Allan S, Vadean F, Collins G, Rand S, Bostock J, Ramsbottom H, Forder J, Lanza S, Cassell J (2021) Care home residents’ quality of life and its association with CQC ratings and workforce issues: The MiCareHQ mixed-methods study. Health Services Delivery Research, 9 (19). DOI: https://doi.org/10.3310/hsdr09190
Malley J, D’Amico F, Fernandez J-L (2019) What is the relationship between the quality of care and quality of life outcomes? Some evidence from the long-term care field, Social Science and Medicine, 243. https://doi.org/10.1016/j.socscimed.2019.112635
Malley J, Rand S, Forder J, Netten A, Towers A-M (2019) Exploring the feasibility and validity of a pragmatic approach to estimating the impact of long-term care, Journal of Long-Term Care, pp. 67-83 https://journal.ilpnetwork.org/articles/abstract/11/
Rand S, Towers A, Razik K, Turnpenny A, Bradshaw J, Caiels J, Smith N. (2019) Feasibility, factor structure and construct validity of the easy-read Adult Social Care Outcomes Toolkit (ASCOT-ER), Journal of Intellectual & Developmental Disability 2019:1-14, DOI: https://doi.org/10.3109/13668250.2019.1592126
Saloniki, E. Malley, J. Burge, P. Lu, H. Batchelder, L. Linnosmaa, I. Trukeschitz, B. (2019) Comparing internet and face-to-face surveys as methods for eliciting preferences for social care-related quality of life: evidence from England using the ASCOT service user measure, Quality of Life Research DOI: https://doi.org/10.1007/s11136-019-02172-2
Caiels, J. Rand S. Crowther, T. Collins, G. Forder, J. (2019) Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT), DOI: https://doi.org/10.1186/s12913-019-4025-1
Rand S, Malley J, Towers A, Netten A, Forder J (2017) Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England, Quality of Life Outcomes, 15:163, DOI: https://doi.org/10.1186/s12955-017-0739-0
Rand, S., Caiels, J., Collins, G. et al. (2017). Developing a proxy version of the Adult social care outcome toolkit (ASCOT). Health Qual Life Outcomes 15, 108 . DOI: https://doi.org/10.1186/s12955-017-0682-0
Turnpenny, A., Caiels, J., Whelton, B., Richardson, L., Beadle‐Brown, J., Crowther, T., Forder, J., Apps, J., & Rand, S. (2016). Developing an easy read version of the adult social care outcomes toolkit (ASCOT). Journal of Applied Research in Intellectual Disabilities, 31(1), e36-e48, DOI: https://doi.org/10.1111/jar.12294
Turnpenny A, Caiels J, Crowther T, Richardson L, Whelton R, Beadle-Brown J, Apps J, Rand S (2015) Developing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT), PSSRU Discussion Paper 2891, University of Kent, Canterbury.
Malley J, Towers A, Netten A, Brazier J, Forder J, Flynn, T (2012) An assessment of the construct validity of the ASCOT measure of social care-related quality of life with older people, Health and Quality of Life Outcomes, 10:21. DOI: http://dx.doi.org/10.1186/1477-7525-10-21
Netten A, Burge P, Malley J, Potoglou D, Towers A, Brazier J, Flynn T, Forder J, Wall B (2012) Outcomes of Social Care for Adults: Developing a Preference-Weighted Measure, Health Technology Assessment, 16, 16, 1-165 DOI: http://dx.doi.org/10.3310/hta16160
Potoglou D, Burge P, Flynn T, Netten A, Malley J, Forder J & Brazier J (2011) Best-worst scaling vs discrete choice experiments: An empirical comparison using social care, Social Science and Medicine, 72, 10, 1717-1727. DOI: https://doi.org/10.1016/j.socscimed.2011.03.027
Forder J, Caiels J (2011) Measuring the outcomes of long-term care, Social Science and Medicine, 73, 12, 1766-1774. DOI: http://dx.doi.org/10.1016/j.socscimed.2011.09.023
Burge P, Potoglou D, Kim C, Hess S (2010) How do the public value different outcomes of social care? Estimation of preference weights for ASCOT, RAND working paper, Rand Europe, Cambridge.
Caiels J, Forder J, Malley J, Netten A, Windle K (2010) Measuring the outcome of low-level services: Final Report, PSSRU Discussion Paper 2699, University of Kent, Canterbury.
Netten A, Beadle-Brown J, Trukeschitz B, Towers A-M, Welch E, Forder J, Smith J, Alden E (2010) Measuring the Outcomes of Care Homes, PSSRU Discussion Paper 2696/2, University of Kent, Canterbury.
Netten A, Burge P, Malley J, Potoglou D, Brazier J, Flynn T and Forder J (2009) Outcomes of Social Care for Adults (OSCA) Interim findings, PSSRU Discussion Paper 2648/2, University of Kent, Canterbury.
Background papers
Forder J, Netten A, Caiels J, Smith J and Malley J (2007) Theoretical concepts in assessing the outcomes of social care. PSSRU Discussion Paper 2480, University of Kent, Canterbury.
Malley J, Sandhu S and Netten A (2006) Younger adults’ understanding of questions for a service user experience survey, Report to The Health and Social Care Information Centre, PSSRU Discussion Paper 2360, University of Kent, Canterbury.
Ryan M, Netten A, Skåtun D and Smith P (2006) Using discrete choice experiments to estimate a preference-based measure of outcome – An application to social care for older people, Journal of Health Economics, 25, 5, 927-944. DOI: https://doi.org/10.1016/j.jhealeco.2006.01.001
Netten A, McDaid D, Fernández J-L, Forder J, Knapp M, Matosevic T. and Shapiro J (2005) Measuring and understanding social services outputs, PSSRU Discussion Paper 2132/3, University of Kent, Canterbury.
Netten A, Ryan M, Smith P, Skatun D, Healey A, Knapp M and Wykes T (2002) The development of a measure of social care outcome for older people, PSSRU Discussion Paper 1690, University of Kent, Canterbury.
ASCOT-Carer Development
Batchelder L, Malley J, Burge P, Lu H, Saloniki E, Linnosmaa L, Trukeschitz B, Forder J. (2019) Carer Social Care-Related Quality of Life Outcomes: Estimating English Preference Weights for the Adult Social Care Outcomes Toolkit for Carers, Value in Health 2019: Nov, DOI: https://doi.org/10.1016/j.jval.2019.07.014
Rand, S., Malley, J., Vadean, F. & Forder, J (2019) Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3 L, Health Qual Life Outcomes 17, 184 DOI: https://doi.org/10.1186/s12955-019-1254-2
Rand S, Malley J, Netten A, Forder, J (2015) Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Quality of Life Research, 24, 11, 2601-2614, DOI: http://dx.doi.org/10.1007/s11136-015-1011-x
Rand S, Malley J, Netten A (2012) Measuring the Social Care Outcomes of Informal Carers, PSSRU Discussion Paper 2833, University of Kent, Canterbury.
ASCOT Applications in the UK
Rand S, Silarova B, Towers A-M, Jones K (2022) Social care-related quality of life of people with dementia and their carers in England, Health and Social Care in the Community. DOI: https://doi.org/10.1111/hsc.13681
Tsiachristas A, Potter C.M, Rocks S. et al. (2020). Estimating EQ-5D utilities based on the Short-Form Long Term Conditions Questionnaire (LTCQ-8). Health Qual Life Outcomes 18, 279. https://doi.org/10.1186/s12955-020-01506-w
Smith, N., Towers, A., Palmer, S., Collins, G. (2019). Quality of Life in older adult care homes: comparing office hours with out of office hours. Journal of Long-term Care. http://doi.org/10.31389/jltc.29
Towers, A., Palmer, S., Smith, N. and Collins, G. (2019). A Cross-sectional Study exploring the relationship between regulator quality ratings and care home residents’ quality of life in England. Health and Quality of Life Outcomes. https://doi.org/10.1186/s12955-019-1093-1
Rand S, Malley J, Forder J, (2018) Are reasons for care‐giving related to carers’ care‐related quality of life and strain? Evidence from a survey of carers in England. Health and Social Care in the Community, 1–10. DOI: 10.1111/hsc.12634
Stevens K, Brazier J, Rowen D (2018) Estimating an exchange rate between the EQ-5D-3L and ASCOT, European Journal of Health Economics, 19, 653–661, DOI: https://doi.org/10.1007/s10198-017-0910-x
Rand S, Forder J, Malley J (2017) A study of dyadic interdependence of control, social participation and occupation of adults who use long-term care services and their carers, Quality of Life Research, DOI: https://link.springer.com/article/10.1007/s11136-017-1669-3
Smith N, Towers A, Palmer S, Beecham J, Welch E (2017) Being occupied: supporting ‘meaningful activity’ in care homes for older people in England, Ageing and Society, DOI: https://doi.org/10.1017/S0144686X17000678
Callaghan L, Brookes, N & Palmer, S (2017) Older people receiving family-based support in the community: a survey of quality of life among users of ‘Shared Lives’ in England, Health and Social Care, DOI: https://doi.org/10.1111/hsc.12422
Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A (2016) IIASC report: Interpreting outcomes data for use in the Adult Social Care Outcomes Framework (ASCOF), PSSRU Discussion Paper 2892, University of Kent, Canterbury.
Forder J, Malley J, Rand S, Vadean F, Jones K, Netten A (2016) IIASC report: Identifying the impact of adult social care: Interpreting outcome data for use in the Adult Social Care Outcomes Framework. Plain English Summary, PSSRU Discussion Paper 2892, University of Kent, Canterbury.
Whitehead P J, James M, Belshaw S, Dawson T, Day M R, & Walker M F (2016) Bathing adaptations in the homes of older adults (BATH-OUT): protocol for a feasibility randomised controlled trial (RCT), BMJ Open, 6, 10, DOI: https://10.1136/bmjopen-2016-013448
Towers A, Smith N, Palmer S, Welch E, & Netten A (2016) The accessibility and feasibility of using the Adult Social Care Outcomes Toolkit (ASCOT) to inform practice in care homes. BMC Health Services Research, 16:523, (available online 29 September 2016), DOI: https://10.1186/s12913-016-1763-1
Mukuria C, Rowen D, Peasgood T, Brazier J (2016) An empirical comparison of well-being measures used in UK, Project Report. Policy Research Unit in Economic Evaluation of Health and Care Interventions (EEPRU) (27). Policy Research Unit in Economic Evaluation of Health and Care Interventions
Yang W, Forder J, & Nizalova O (2016) Measuring the productivity of residential long-term care in England: methods for quality adjustment and regional comparison, The European Journal of Health Economics, DOI: https://10.1007/s10198-016-0816-z
Bauer A, Knapp M, Wistow G, Perkins M, King D, & Iemmi V (2016) Costs and economic consequences of a help-at-home scheme for older people in England, Health and Social Care in the Community, DOI: https://10.1111/hsc.12372
Rand S, Malley J (2016) The factors associated with care-related quality of life of adults with intellectual disabilities in England: implications for policy and practice, Health and Social Care in the Community, DOI: http://dx.doi.org/10.1111/hsc.12354
Rand S, Malley J (2014) Carers’ quality of life and experiences of adult social care support in England, Health and Social Care in the Community, 22, 4, 375-385, DOI: http://dx.doi.org/10.1111/hsc.12089
Johnstone L, Page C (2014) Using Adult Social Care Outcomes Toolkit (ASCOT) in the assessment and review process. Research, Policy and Planning, 2013/14, 30, 3, 179-192.
Van Leeuwen K, Malley J, Bosmans J, Jansen A, Ostelo R, van der Horst H, Netten A (2014) What can local authorities do to improve the social care-related quality of life of older adults living at home? Evidence from the Adult Social Care Survey. Health and Place, 29, 104-113 DOI: http://dx.doi.org/10.1016/j.healthplace.2014.06.004
Netten A, Trukeschitz B, Beadle-Brown J, Forder J, Towers A, Welch E (2012) Quality of life outcomes for residents and quality ratings of care homes: is there a relationship? Age and Ageing DOI: http://dx.doi.org/10.1093/ageing/afs050
Netten A, Jones K, Knapp M, Fernandez J-L, Challis D, Glendinning C, Jacobs S, Manthorpe J, Moran N, Stevens M, Wilberforce M, (2011) Personalisation through Individual Budgets: Does It Work and for Whom? British Journal of Social Work, 42, 8, 1556-1573. DOI: http://dx.doi.org/10.1093/bjsw/bcr159
Netten A, Beadle-Brown J, Welch E (2010) Measuring the productivity of workforce development in care homes: Final report. PSSRU Discussion Paper No. 2733/3, University of Kent, Canterbury.
Malley J, Netten A (2009) Measuring Outcomes of Social Care, Research, Policy and Planning, 27, 2, 85-96.
Glendinning C, Challis D, Fernández JL, Jacobs K, Knapp M, Manthorpe J, Moran N, Netten A, Stevens M and Wilberforce, M (2008) Evaluation of the Individual Budgets Pilot Programme: Final Report, Social Policy Research Unit, University of York, York, http://php.york.ac.uk/inst/spru/pubs/1119/.
Malley J, Netten A (2008) Measuring and monitoring outputs in social care: the problem of measuring quality, International Review of Administrative Sciences, 74, 4, 535-553, Special Edition from European Group of Public Administration Conference, Madrid, 19-22 September 2007, http://ras.sagepub.com/content/74/4/535
International Use
Translations of ASCOT
Nakamura H, Yamaguchi M, Rand S (2021) Assessing the structural characteristics of the Japanese version of the Adult Social Care Outcomes Toolkit for Carers. Home Health Care Management & Practice DOI: https://doi.org/10.1177/10848223211030269
Nguyen N, Linnosmaa I, Jokimäki H, Rand S, Malley J, Razik K, Trukeschitz B, Forder J (2021) Social care-related outcomes in Finland. Construct validity, internal consistency, and structural validity of the Finnish ASCOT with older home care users. Health and Social Care in the Community. DOI: http://doi.org/10.1111/hsc.13328
Trukeschitz B, Litschauer J, Hajji A, Kieninger J, Schoch A, Malley J, Rand S, Linnosmaa I & Forder J (2021) Translation, Cultural Adaptation and Construct Validity of the German Version of the Adult Social Care Outcomes Toolkit for Informal Carers (German ASCOT-Carer). Quality of Life Research, 30, (3), 905–920, DOI: https://doi.org/10.1007/s11136-020-02682-4
Trukeschitz Birgit, Litschauer Judith, Hajji Assma, Kieninger Judith, Schoch Adiam, Malley Juliette, Rand Stacey, Linnosmaa Ismo and Forder Julien (2020) Cross-Cultural Adaptation and Construct Validity of the German Version of the Adult Social Care Outcomes Toolkit for Service Users (German ASCOT). Health and Quality of Life Outcomes, 18:326, 1-19, DOI: http://doi.org/10.1111/hsc.13328
Nakamura-Thomas, Hiromi, Morikawa, Mie, Moriyama, Yoko, Shiroiwa, Takeru, Kyougoku, Makoto, Razik, Kamilla and Malley, Juliette (2019) Japanese translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) in Japanese social service users. Health and Quality of Life Outcomes, 17 (59). https://doi.org/10.1186/s12955-019-1128-7
Thomas, H N. Morikawa, M. Moriyama, Y. Shiroiwa, T. Kyougoku, M. Razik, K. and Juliette Malley (2019) Japanese translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) in Japanese social service users, Health and Quality of Life Outcomes, DOI: https://doi.org/10.1186/s12955-019-1128-7
Van Leeuwen K, Bosmans J, Jansen A, Rand S, Towers A, Smith N, Razik K, Trukeschitz B, van Tulder M, van der Horst H, Ostelo R (2015) Dutch translation of cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT), Health and Quality of Life Outcomes, 13:56, DOI: http://10.1186/s12955-015-0249-x
ASCOT and ASCOT-Carer Development
Bucholc, J., McCaffrey, N., Ugalde, A. et al. (2023) How well do the adult social care outcomes toolkit for carers, carer experience scale and care-related quality of life capture aspects of quality of life important to informal carers in Australia? Qual Life Res 32, 3109–3121 https://doi.org/10.1007/s11136-023-03459-1
Nguyen Lien, Jokimäki Hanna, Linnosmaa Ismo, Saloniki Eirini, Batchelder Laurie, Malley Juliette, Lu Hui, Burge Peter, Trukeschitz Birgit, Forder Julien (2021) Do you prefer safety to social participation? Finnish population-based preference weights for the Adult Social Care Outcomes Toolkit (ASCOT) for service users. Medical Decision Making Policy & Practice. https://doi.org/10.1177/23814683211027902.
Nguyen Lien, Jokimäki Hanna, Linnosmaa Ismo, Saloniki Eirini, Batchelder Laurie, Malley Juliette, Lu Hui, Burge Peter, Trukeschitz Birgit, Forder Julien (2021) Valuing carers’ quality of life using best-worst scaling—Finnish preference weights for the Adult Social Care Outcomes Toolkit for carers (ASCOT-Carer). European Journal of Health Economics. https://doi.org/10.1007/s10198-021-01356-3
McCaffrey N, Bucholc J, Rand S, Hoefman R, Ugalde A, Muldowney A, Mihalopoulos C, Engel L (2020) Head-to-head comparison of the psychometric properties of three carer-related preference-based instruments, Value in Health, 23(11), 1477-1488. DOI: https://doi.org/10.1016/j.jval.2020.07.005
Hajji, Assma; Trukeschitz, Birgit; Malley, Juliette; Batchelder, Laurie; Saloniki, Elrini; Linnosmaa, Ismo; Lu, Hui. (2020). Population-based preference weights for the Adult Social Care Outcomes Toolkit (ASCOT) for service users for Austria: Findings from a best-worst experiment. Social Science and Medicine. 250 (112792), 1-10. DOI: https://doi.org/10.1016/j.socscimed.2020.112792
Engel L, Rand S, Hoefman R, Bucholc J, Mihalopoulos C, Muldowney A, Ugalde A, McCaffrey N (2020) Measuring carer outcomes in an economic evaluation: A content comparison of the Adult Social Care Outcomes Toolkit for Carers, Carer Experience Scale and Care-related Quality of Life using exploratory factor analysis, Medical Decision Making, 40(7), 885–896. DOI: https://doi.org/10.1177/0272989X20944193
Shiroiwa Takeru, Moriyama Yoko, Nakamura-Thomas Hiromi, Morikawa Mie, Fukuda Takashi, Batchelder Laurie, Saloniki Eirini-Christina, Malley Juliette (2019) Development of Japanese utility weights for the Adult Social Care Outcomes Toolkit (ASCOT) SCT4. Quality of Life Research, https://doi.org/10.1007/s11136-019-02287-6
Trukeschitz Birgit, Litschauer Judith, Kieninger Judith, Hajji Assma, and Schoch Adiam (2018): Study Design and Descriptive Statistics for the Austrian Sample of Adult Users of Home Care Services, EXCELC-Discussion Paper No. 2/2018 and Discussion Paper No. 4/2018 of the WU Research Institute for Economics of Aging, Vienna University of Economics and Business, Austria.
Trukeschitz Birgit, Litschauer Judith, Kieninger Judith, Hajji Assma, and Schoch Adiam (2018): Study Design and Descriptive Statistics for the Austrian Sample of Informal Carers, EXCELC-Discussion Paper No. 3/2018 and Discussion Paper No. 5/2018 of the WU Research Institute for Economics of Aging, Vienna University of Economics and Business, Austria.
Yamaguchi M, Rand S (2019) Issues and challenges in comparing carers’ quality of life in England and Japan: lessons from developing the Japanese version of the ASCOT-Carer. International Journal of Care and Caring, 3:3, 459-464, DOI: https://doi.org/10.1332/239788219X15597493546625
VQuality of life in a broader perspective: Does ASCOT reflect the capability approach? Quality of Life Research, https://link.springer.com/article/10.1007/s11136-017-1756-5
Kaambwa B, Gill L, McCaffrey N, Lanscar E, Cameron I D, Crotty M, Gray L, Ratcliffe J (2015) An empirical comparison of the OPQoL-Brief, EQ-5D-3 L and ASCOT in a community dwelling population of older people. Health and Quality of Life Outcomes, 13:164, http://hqlo.biomedcentral.com/articles/10.1186/s12955-015-0357-7
Van Leeuwen K M, Bosmans J E, Jansen A P D, Hoogendijk E O, van Tulder M W, van der Horst H E, Ostelo R W (2015) Comparing measurement properties of the EQ-5D-3L, ICECAP-O, and ASCOT in frail older adults, Value in health, 18:1, 35–43, DOI: http://10.1016/j.jval.2014.09.006
Van Leeuwen K M, Jansen A P D, Muntinga M E, Bosmans J E, Westerman M J, van Tulder M W, van der Horst H E (2015) Exploration of the content validity and feasibility of the EQ-5D-3L, ICECAP-O and ASCOT in older adults. BMC Health Services Research, 15:201, http://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-015-0862-8
ASCOT Applications
Linnosmaa I, Nguyen L, Jokimäki H, Saloniki E, Malley J, Trukeschitz B, Hajji, Forder J (2024) Quality of life outcomes for informal carers of long-term care service users in Austria, England and Finland, Quality of Life Research. DOI: https://doi.org/10.1007/s11136-024-03711-2
Savvas, S., Goh, A.M.Y., Batchelor, F. et al. Promoting Independence Through quality dementia Care at Home (PITCH): a research protocol for a stepped-wedge cluster-randomised controlled trial. Trials 22, 949 (2021). https://doi.org/10.1186/s13063-021-05906-1
Trukeschitz, Birgit; Hajji, Assma; Batchelder, Laurie; Saloniki, Eirini; Linnosmaa, Ismo; Malley, Juliette. (2021). What’s important when caring for a loved one? Population-based preference weights for the Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) for Austria, Quality of Life Research, https://doi.org/10.1007/s11136-021-02775-8.
Trukeschitz Birgit, Hajji Assma, Kieninger Judith, Malley Juliette, Linnosmaa Ismo and Forder Julien (2021) Investigating factors influencing quality-of-life effects of home care services in Austria, England, and Finland: a comparative analysis.. European Journal of Social Policy: 1-17, https://doi.org/10.1177/0958928720974189
Phillipson, L., Smith, L., Caiels, J., Towers, A. and Jenkins, S. (2019). A cohesive research approach to assess care related quality of life in older people with cognitive impairment: Lessons learned from adapting an Easy Read survey. International Journal of Qualitative Methods. https://doi.org/10.1177/1609406919854961
Mulhern B, Norman R, De Abreu Lourenco R, Malley J, Street D, Viney R (2019) Investigating the relative value of health and social care related quality of life using a discrete choice experiment. Social Science & Medicine, 223, 28-37, DOI: https://doi.org/10.1016/j.socscimed.2019.05.032
Towers, A. Nelson, K. Smith, N. and Razik, K. (2018). Using ASCOT in Care Planning Conversations. Australian Journal of Dementia Care. December 2018/January 2019
Trukeschitz, Birgit; Hajji, Assma; Litschauer, Judith; Kieninger, Judith; Linnosmaa, Ismo.2018. Wie wirken sich Pflegedienste auf die Lebensqualität aus? [How do care services affect quality of life?] Trendreport 1/2018, 20.06.18 (Report in German only)
Bulamu N B, Kaambwa B, Ratcliffe J (2015) A systematic review of instruments for measuring outcomes in economic evaluation within aged care, Health and Quality of Life Outcomes, 13:179, DOI: http://10.1186/s12955-015-0372-8
Makai P, Brouwer W B F, Koopmanschap M A, Stolk E A, Nieboer A P (2014) Quality of Life instruments for economic evaluations in health and social care for older people: a systematic review, Social Science & Medicine, 102, 83-93, DOI: http://10.1016/j.socscimed.2013.11.050.
Milte C M, Walker R, Luszcz M A, Lancsar E, Kaambwa B, Ratcliffe J (2014) How important is health status in defining quality of life for older people? An exploratory study of the views of older South Australians. Applied Health Econ Health Policy, 12(1) ,73-84, DOI: http://10.1007/s40258-013-0068-3
Redshaw S, Fine M (2013) Measuring the Outcomes of Case Managed Community Care Towards a practical instrument for Australian home support, Centre for Research on Social Inclusion Department of Sociology, Macquarie University, Sydney
Steffansson M, Pulliainen M, Kettunen A, Linnosmaa I, Halonen M (2016) The Association between Freedom of Choice and Effectiveness of Home Care Services,
International Journal of Integrated Care 16(1):5, DOI: http://doi.org/10.5334/ijic.2448
Trukeschitz B (2011) Worauf es letztlich ankommt. Ergebnisqualität in der Langzeitpflege und-betreuung. Kurswechsel, 4:2011, 22 – 35.